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T Scott
05-03-2007, 09:24 AM
Now that I have your attention..:D :D ...Please check out the Paypal for Trinity Bright thread. This little girl needs our help.

http://www.tmcowners.com/teamtalk/showthread.php?t=15827

cmack
05-03-2007, 09:46 AM
Please take some time away for the swimsuit thread to read her story:::

www.caringbridge.org/visit/trinitybright (http://www.caringbridge.org/visit/trinitybright)
Taken frrom her website :
http://www.caringbridge.org/cb/photos/trinitybright/large/2d678e2a1113821bc0f3e82.JPG
"On July 7, 2000 my parents John and Angel Bright welcomed me with open arms into the world. I was born at 10:51a.m., weighed 7lbs. 2oz. and was 19 inches long.

I now attend 1st grade at Greenfield Elementary where I am a straight "A" student.

My life was as normal as normal could be, until Saturday, March 3, 2007. On this day I got up as normal, had eggs for breakfast, went to my soccer game, came home, showered and as my mom was brushing my hair I noticed I could see two images of myself in the mirror. I told my mom, but she just thought I was being silly...she sent me to put on my clothes and shoes, I couldn't see my laces clearly enough to tie my own shoes, I asked my mom for help...as she bent down to tie my shoes I noticed that she had two heads...I was scared. I told her what was wrong and as she looked up at me she noticed that my eyes were crossed. I had double vision!

She called my pediatrician the next morning and the requested to see me right away. We went to the pediatrician's office at 11:30. My regular doctor wasn't available so I saw someone else, Dr. Dalton. Dr. Dalton immediately called a pediatric eye specialist and they decided we need to see him on Monday.

On Monday we saw Dr. Packwood...he gave us three possibilities...rapid eye loss, nerve loss, or a tumor. He was very optimistic and said we would wait until Friday, see if things changed, if they didn't we would proceed with an MRI just a precaution.

In the meantime I wore glasses with a patch over one eye to keep me from having constant double vision.

We saw him (Dr. Packwood) again on Friday and my vision was the same, no changes. He suggested we move forward with the MRI, though confident we wouldn't find anything life changing.

Monday, March 12,2007 we went to Cook's surgery center and I had an MRI. We were told we should have results within 3 to 10 days. That evening at 9:30p.m. the doctor called. He spoke to my dad. He told my dad that they had found something in the MRI and needed us to see an Oncologist at Cook Children's Hospital on Tuesday at 1:30p.m. My mom and dad were so scared, what was happening??

On Tuesday, we went to meet with Dr. Olvera at Cook's. I went and played with the Child Life Specialist while the doctor spoke to my parents. It was then that she gave them the horrible news!!

Trinity was diagnosed with a Diffuse Pontine Glimoa. She was given a life expectancy of 6-12 months.

This is a rare type of cancer that effects only 5 in 100 brain tumors reported.

These tumors are located in the brainstem, at the base of the brain. They are usually diagnosed in children aged 5 to 10. They are difficult to treat because the tumor cells grow in between and around normal cells. It is impossible to remove a tumor in this area because it interferes with the functioning of this critical area of the brain.

Some symptoms are muscle weakness on one side of the body, swallowing problems, speech problems, crossed eyes, drowsiness, hearing loss, and personality changes. The brainstem has cranial nerves that control many of these functions. The tumors affect these nerves and cause symptoms.

These tumors are treated with radiation therapy, which are high-energy X-rays, gamma rays, or electrons that destroy tumor cells. This treatment can reduce symptoms significantly, but there may be some permanent damage caused by the tumor which can’t be helped. Steroids, another type of drug, are often given to improve some of the symptoms. Surgery is not part of the standard treatment because it is too damaging to this part of the brain.

Because they are difficult to treat, the outcome for brainstem gliomas is poor. After diagnosis, the survival time is on average 9 to 12 months. To improve the outcome, doctors have tried giving higher amounts of radiation, or using chemotherapy medicines to kill the tumor cells. Research is underway to achieve better results. When the tumor recurs, the focus of treatment is on managing symptoms to make sure the child is as comfortable as possible.

As you can imagine we were devastated by this news...how could this happen to our sweet baby girl? I think at this point it is still hard for us to believe the reality of what if happening. We need all of the prayers and support you can offer. At this time we are currently seeking treatment options around the world. There have been no reported cases of anyone beating this disease, but we want to!!

Trinity is scheduled to begin radiation therapy next week, so there is still time! If you have any advice or contacts please, please share them with us.

We have to save a precious baby!!"

cmack
05-03-2007, 03:25 PM
http://www.caringbridge.org/cb/photos/trinitybright/large/2d678e2a1113821bc0f3e61.JPG

cmack
05-03-2007, 03:25 PM
http://www.caringbridge.org/cb/photos/trinitybright/large/4c2db255111763dd4e152cd.jpg

cmack
05-03-2007, 03:26 PM
http://www.caringbridge.org/cb/photos/trinitybright/large/2d678e2a1113821bc0f3e38.JPG

cmack
05-03-2007, 03:27 PM
http://www.caringbridge.org/cb/photos/trinitybright/large/5d6e8fd01117615b0cd4c8a.jpg